Insight into how treatment actually works, outside of clinical trials
Youwell gives life science organisations a participant interface for patient programmes, decentralised trial elements, and structured data collection over time.
Structured data from patients in ordinary clinical use
Challenges in life science
Documentation from clinical trials says little about how a treatment is used and experienced in ordinary practice.
- Limited access to data from patients outside the trial population
- Patient support programmes delivered on paper, by email, and by phone, with no structured data
- No shared interface for training, reminders, and patient reporting
- Challenging to collect patient-reported data over time across sites and countries
- Unclear boundaries between information for the patient and the company's access to data
- Roles and responsibilities between sponsor, healthcare provider, and supplier need to be documented
A configurable platform provides a shared participant interface, where purpose, data flow, and access are agreed before the programme is set up.
How Youwell creates value
Build patient programmes and structured data collection on a technical platform developed and operated by Youwell.
- A participant interface for patient programmes, with content, video, reminders, and logging
- Diaries and structured logging of medication use, side effects, and symptoms
- Psychoeducational content that can be linked directly to the medicine or intervention
- Structured collection of patient-reported data over time, with timestamping
- Programme profiles for different countries, indications, or variants of the same programme
- Exports in CSV or Excel with a codebook, or via API to your own data environment
- The ability to run the programme in collaboration with healthcare providers who already use the platform
Typical use cases
Below are the use cases we see most often - they can be combined and adapted, and are all built from the same building blocks: modules, forms, diaries, logging, tasks, dialogue, video, messages, notifications, flagging, and data exports.
Patient support programme at treatment start
The patient gets a structured programme with training modules, video on administration technique, and reminders about dosing and check-ups. The content is set up per indication, and the programme can exist in multiple language and country variants. The boundary between information for the patient and which data the company itself gets access to is defined in the setup.
Adherence, diary, and side-effect logging
The patient keeps a diary of dose, sample collection, check-ups, and any side effects, with reminders according to an agreed plan. The medication log can be linked directly to the psychoeducational content in the programme, so the patient gets relevant information when it's needed. The logs are available to the follow-up healthcare staff where the programme is run together with a healthcare provider.
Decentralised elements in clinical trials
Parts of a trial are moved home to the participant: digital trial information, home logging of outcome measures, and remote video consultation. The platform provides the participant interface, while the trial's other systems receive data through agreed exports. Measurement points, reminders, and form versions are controlled in the setup.
Electronic outcome measures over time
Validated instruments are set up as forms with fixed scoring and locked versions, and responses are timestamped. Exports happen in a structured format with a codebook, so the dataset can be used further in analysis.
Real-world clinical practice data
A defined patient group logs symptoms, function, and quality of life over time while the treatment is used in the ordinary way. The dataset can be used to describe usage patterns and outcomes outside controlled trials. Purpose, legal basis, and who is responsible for treatment are clarified before collection starts.
Logging from sensors and activity trackers
Data from activity trackers, blood pressure and blood glucose monitors, and health apps can be brought in via integration and viewed alongside the patient's own logs. Each measurement gets metadata on source, timestamp, and device type. This gives a broader data basis than self-reporting alone.
Training for healthcare professionals
Modules, video, and knowledge tests are assigned to clinicians adopting a product or a procedure. Completion is logged per user, so the company can document who has received which training. The same setup can be reused for new groups and new versions of the content.
Collaborative programme with a healthcare provider
Where the programme is to be part of a treatment pathway, it can be set up together with a healthcare provider who is responsible for the patient data. Roles and access clearly separate clinical follow-up from the company's own exports. This makes the division of responsibility documentable from the start.
Our examples come mainly from healthcare and research, but they show the same building blocks used in patient programmes and decentralised data collection.
See customer storiesAuthor, deliver, and analyse - in one platform
Author
The programme is set up with content, forms, reminders, and variants per country or indication, with version control on the content.
Deliver
Participants follow the programme in the app or browser, with reminders, logging, and any video touchpoints.
Analyse
Structured data is exported in an agreed format for analysis, documentation, and further development of the programme.
See the Youwell platform
Book a demo, and we'll walk through how a patient programme or a data collection can be set up.